Australian Digital Health Agency FHIR Implementation Guide 1.0.0

Australian Digital Health Agency FHIR Implementation Guide. This is the current published version. It is based on FHIR® version 4.0.1. See the Directory of published versions for a list of available versions.

StructureDefinition: ADHA Record of Consent from Australian Organ Donor Register [Active]

The purpose of this profile is to define a representation of a record of organ and tissue donation decision held by the Australian Organ Donor Register for the electronic exchange of digital health information between individuals, healthcare providers, and the My Health Record system infrastructure in Australia.

This profile identifies the additional constraints, extensions, and value sets that build on and extend Consent that are supported.

This profile is designed to set a Consent standard for:

  • Query for a record of consent from the Australian Organ Donor Register associated with a patient
  • Record or update a record of consent from the Australian Organ Donor Register associated with a patient

Profile specific guidance

  • An individual’s decision not to be a donor is represented as Consent.provision.type = “deny”, see example Australian Organ Donor Register Consent - Not willing to be a donor.
  • An individual’s decision to be a donor is represented as Consent.provision.type = “permit” and the resource SHALL include the full set of child provisions representing the individual’s decision with respect to each potential organ and/or tissue for transplantation:
  • In an exchange with the My Health Record system references to a BodyStructure resource will be contained.

Boundaries and relationships

This profile is not referenced by another profile in this implementation guide.

Formal Views of Profile Content

The official URL for this profile is:

http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-consent-aodr-1

The purpose of this profile is to define a representation of a record of organ and tissue donation decision held by the Australian Organ Donor Register for the electronic exchange of digital health information between individuals, healthcare providers, and the My Health Record system infrastructure in Australia.

This profile builds on Consent.

This profile was published on 2023-04-14 04:02:01+0000 as a active by Australian Digital Health Agency.

Description of Profiles, Differentials, Snapshots, and how the XML and JSON presentations work.

NameFlagsCard.TypeDescription & Constraintsdoco
.. Consent 0..*ConsentRecord of organ and tissue donation decision held by the Australian Organ Donor Register
... Slices for extension 0..*ExtensionExtension
Slice: Unordered, Open by value:url
... dateInitialRegistration S0..1dateTimeDate the individual first registered
URL: http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-date-initial-registration-1
... identifier S1..*IdentifierIdentifier for this record (external references)
... status S1..1codedraft | proposed | active | rejected | inactive | entered-in-error
Fixed Value: active
... scope S1..1CodeableConceptWhich of the four areas this resource covers (extensible)
Required Pattern: At least the following
.... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
..... system1..1uriIdentity of the terminology system
Fixed Value: http://terminology.hl7.org/CodeSystem/consentscope
..... code1..1codeSymbol in syntax defined by the system
Fixed Value: adr
... Slices for category S1..*CodeableConceptClassification of the consent statement - for indexing/retrieval
Slice: Unordered, Open by pattern:$this
.... category:health 1..1CodeableConceptConsent for healthcare service, procedure, or activity
Required Pattern: At least the following
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... system1..1uriIdentity of the terminology system
Fixed Value: http://loinc.org
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 59284-0
.... category:aodr 1..1CodeableConceptOrgan donation consent
Required Pattern: At least the following
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... system1..1uriIdentity of the terminology system
Fixed Value: http://loinc.org
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 64300-7
... patient SC1..1Reference(ADHA Core Patient)Who the consent applies to
inv-dh-cons-aodr-01: At least reference or a valid identifier shall be present
... dateTime SC1..1dateTimeWhen this Consent was created or indexed
inv-dh-cons-aodr-03: Date shall be at least to day
... performer SC1..1Reference(ADHA Core Patient)Grantor of consent
inv-dh-cons-aodr-04: At least reference or a valid identifier shall be present
... organization SC1..1Reference(ADHA Core Organization)Custodian of the consent
inv-dh-cons-aodr-05: At least reference or display or a valid identifier shall be present
... policy S1..1BackboneElementAustralian Organ Donor Register
.... authority S0..1uriEnforcement source for policy
Fixed Value: http://australianorgandonorregister.gov.au
.... uri S1..1uriSpecific policy covered by this consent
Fixed Value: http://www.australianorgandonorregister.gov.au/aodr
... provision SC1..1BackboneElementIndividual's decision about donation
inv-dh-cons-aodr-02: Specific provisions shall be specified if the individual is willing to donate, otherwise prohibited
.... type S1..1codedeny | permit
.... action S1..1CodeableConceptRemoval of organ or tissue for donation
Required Pattern: At least the following
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... system1..1uriIdentity of the terminology system
Fixed Value: http://snomed.info/sct
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 53958007
.... provision S0..*BackboneElementIndividual's decision about donation of specific organ or tissue
..... type S1..1codedeny | permit
..... action S1..1CodeableConceptRemoval of organ or tissue for donation
Required Pattern: At least the following
...... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
....... system1..1uriIdentity of the terminology system
Fixed Value: http://snomed.info/sct
....... code1..1codeSymbol in syntax defined by the system
Fixed Value: 53958007
..... data S1..1BackboneElementThe organ or tissue that is the target of the donation decision
...... meaning 1..1codeinstance | related | dependents | authoredby
Fixed Value: instance
...... reference S1..1Reference(ADHA Organ or Tissue for Donation BodyStructure)The actual data reference
....... reference 1..1stringLiteral reference, Relative, internal or absolute URL

doco Documentation for this format
NameFlagsCard.TypeDescription & Constraintsdoco
.. Consent C0..*ConsentRecord of organ and tissue donation decision held by the Australian Organ Donor Register
... id Σ0..1idLogical id of this artifact
... meta Σ0..1MetaMetadata about the resource
... implicitRules ?!Σ0..1uriA set of rules under which this content was created
... language 0..1codeLanguage of the resource content
Binding: CommonLanguages (preferred): A human language.

Additional BindingsPurpose
AllLanguagesMax Binding
... text 0..1NarrativeText summary of the resource, for human interpretation
... contained 0..*ResourceContained, inline Resources
... Slices for extension 0..*ExtensionExtension
Slice: Unordered, Open by value:url
... dateInitialRegistration S0..1dateTimeDate the individual first registered
URL: http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-date-initial-registration-1
... modifierExtension ?!0..*ExtensionExtensions that cannot be ignored
... identifier SΣ1..*IdentifierIdentifier for this record (external references)

Example General: {"system":"urn:ietf:rfc:3986","value":"Local eCMS identifier"}
... status ?!SΣ1..1codedraft | proposed | active | rejected | inactive | entered-in-error
Binding: ConsentState (required): Indicates the state of the consent.


Fixed Value: active
... scope ?!SΣ1..1CodeableConceptWhich of the four areas this resource covers (extensible)
Binding: ConsentScopeCodes (extensible): The four anticipated uses for the Consent Resource.


Required Pattern: At least the following
.... id0..1idUnique id for inter-element referencing
.... extension0..*ExtensionAdditional content defined by implementations
.... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
..... id0..1idUnique id for inter-element referencing
..... extension0..*ExtensionAdditional content defined by implementations
..... system1..1uriIdentity of the terminology system
Fixed Value: http://terminology.hl7.org/CodeSystem/consentscope
..... version0..1stringVersion of the system - if relevant
..... code1..1codeSymbol in syntax defined by the system
Fixed Value: adr
..... display0..1stringRepresentation defined by the system
..... userSelected0..1booleanIf this coding was chosen directly by the user
.... text0..1stringPlain text representation of the concept
... Slices for category SΣ1..*CodeableConceptClassification of the consent statement - for indexing/retrieval
Slice: Unordered, Open by pattern:$this
Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement.


.... category:health Σ1..1CodeableConceptConsent for healthcare service, procedure, or activity
Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement.



Required Pattern: At least the following
..... id0..1idUnique id for inter-element referencing
..... extension0..*ExtensionAdditional content defined by implementations
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... id0..1idUnique id for inter-element referencing
...... extension0..*ExtensionAdditional content defined by implementations
...... system1..1uriIdentity of the terminology system
Fixed Value: http://loinc.org
...... version0..1stringVersion of the system - if relevant
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 59284-0
...... display0..1stringRepresentation defined by the system
...... userSelected0..1booleanIf this coding was chosen directly by the user
..... text0..1stringPlain text representation of the concept
.... category:aodr Σ1..1CodeableConceptOrgan donation consent
Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement.



Required Pattern: At least the following
..... id0..1idUnique id for inter-element referencing
..... extension0..*ExtensionAdditional content defined by implementations
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... id0..1idUnique id for inter-element referencing
...... extension0..*ExtensionAdditional content defined by implementations
...... system1..1uriIdentity of the terminology system
Fixed Value: http://loinc.org
...... version0..1stringVersion of the system - if relevant
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 64300-7
...... display0..1stringRepresentation defined by the system
...... userSelected0..1booleanIf this coding was chosen directly by the user
..... text0..1stringPlain text representation of the concept
... patient SΣC1..1Reference(ADHA Core Patient)Who the consent applies to
inv-dh-cons-aodr-01: At least reference or a valid identifier shall be present
... dateTime SΣC1..1dateTimeWhen this Consent was created or indexed
inv-dh-cons-aodr-03: Date shall be at least to day
... performer SΣC1..1Reference(ADHA Core Patient)Grantor of consent
inv-dh-cons-aodr-04: At least reference or a valid identifier shall be present
... organization SΣC1..1Reference(ADHA Core Organization)Custodian of the consent
inv-dh-cons-aodr-05: At least reference or display or a valid identifier shall be present
... source[x] Σ0..1Source from which this consent is taken
.... sourceAttachmentAttachment
.... sourceReferenceReference(Consent | DocumentReference | Contract | QuestionnaireResponse)
... policy S1..1BackboneElementAustralian Organ Donor Register
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... authority SC0..1uriEnforcement source for policy
Fixed Value: http://australianorgandonorregister.gov.au
.... uri SC1..1uriSpecific policy covered by this consent
Fixed Value: http://www.australianorgandonorregister.gov.au/aodr
... policyRule ΣC0..1CodeableConceptRegulation that this consents to
Binding: ConsentPolicyRuleCodes (extensible): Regulatory policy examples.

... verification Σ0..*BackboneElementConsent Verified by patient or family
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... verified Σ1..1booleanHas been verified
.... verifiedWith 0..1Reference(Patient | RelatedPerson)Person who verified
.... verificationDate 0..1dateTimeWhen consent verified
... provision SΣC1..1BackboneElementIndividual's decision about donation
inv-dh-cons-aodr-02: Specific provisions shall be specified if the individual is willing to donate, otherwise prohibited
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... type SΣ1..1codedeny | permit
Binding: ConsentProvisionType (required): How a rule statement is applied, such as adding additional consent or removing consent.

.... period Σ0..1PeriodTimeframe for this rule
.... actor 0..*BackboneElementWho|what controlled by this rule (or group, by role)
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
..... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
..... role 1..1CodeableConceptHow the actor is involved
Binding: SecurityRoleType (extensible): How an actor is involved in the consent considerations.

..... reference 1..1Reference(Device | Group | CareTeam | Organization | Patient | Practitioner | RelatedPerson | PractitionerRole)Resource for the actor (or group, by role)
.... action SΣ1..1CodeableConceptRemoval of organ or tissue for donation
Binding: ConsentActionCodes (example): Detailed codes for the consent action.



Required Pattern: At least the following
..... id0..1idUnique id for inter-element referencing
..... extension0..*ExtensionAdditional content defined by implementations
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... id0..1idUnique id for inter-element referencing
...... extension0..*ExtensionAdditional content defined by implementations
...... system1..1uriIdentity of the terminology system
Fixed Value: http://snomed.info/sct
...... version0..1stringVersion of the system - if relevant
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 53958007
...... display0..1stringRepresentation defined by the system
...... userSelected0..1booleanIf this coding was chosen directly by the user
..... text0..1stringPlain text representation of the concept
.... securityLabel Σ0..*CodingSecurity Labels that define affected resources
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


.... purpose Σ0..*CodingContext of activities covered by this rule
Binding: PurposeOfUse (extensible): What purposes of use are controlled by this exception. If more than one label is specified, operations must have all the specified labels.


.... class Σ0..*Codinge.g. Resource Type, Profile, CDA, etc.
Binding: ConsentContentClass (extensible): The class (type) of information a consent rule covers.


.... code Σ0..*CodeableConcepte.g. LOINC or SNOMED CT code, etc. in the content
Binding: ConsentContentCodes (example): If this code is found in an instance, then the exception applies.


.... dataPeriod Σ0..1PeriodTimeframe for data controlled by this rule
.... data Σ0..*BackboneElementData controlled by this rule
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
..... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
..... meaning Σ1..1codeinstance | related | dependents | authoredby
Binding: ConsentDataMeaning (required): How a resource reference is interpreted when testing consent restrictions.

..... reference Σ1..1Reference(Resource)The actual data reference
.... provision S0..*BackboneElementIndividual's decision about donation of specific organ or tissue
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
..... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
..... type SΣ1..1codedeny | permit
Binding: ConsentProvisionType (required): How a rule statement is applied, such as adding additional consent or removing consent.

..... period Σ0..1PeriodTimeframe for this rule
..... actor 0..*BackboneElementWho|what controlled by this rule (or group, by role)
...... id 0..1stringUnique id for inter-element referencing
...... extension 0..*ExtensionAdditional content defined by implementations
...... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
...... role 1..1CodeableConceptHow the actor is involved
Binding: SecurityRoleType (extensible): How an actor is involved in the consent considerations.

...... reference 1..1Reference(Device | Group | CareTeam | Organization | Patient | Practitioner | RelatedPerson | PractitionerRole)Resource for the actor (or group, by role)
..... action SΣ1..1CodeableConceptRemoval of organ or tissue for donation
Binding: ConsentActionCodes (example): Detailed codes for the consent action.



Required Pattern: At least the following
...... id0..1idUnique id for inter-element referencing
...... extension0..*ExtensionAdditional content defined by implementations
...... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
....... id0..1idUnique id for inter-element referencing
....... extension0..*ExtensionAdditional content defined by implementations
....... system1..1uriIdentity of the terminology system
Fixed Value: http://snomed.info/sct
....... version0..1stringVersion of the system - if relevant
....... code1..1codeSymbol in syntax defined by the system
Fixed Value: 53958007
....... display0..1stringRepresentation defined by the system
....... userSelected0..1booleanIf this coding was chosen directly by the user
...... text0..1stringPlain text representation of the concept
..... securityLabel Σ0..*CodingSecurity Labels that define affected resources
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


..... purpose Σ0..*CodingContext of activities covered by this rule
Binding: PurposeOfUse (extensible): What purposes of use are controlled by this exception. If more than one label is specified, operations must have all the specified labels.


..... class Σ0..*Codinge.g. Resource Type, Profile, CDA, etc.
Binding: ConsentContentClass (extensible): The class (type) of information a consent rule covers.


..... code Σ0..*CodeableConcepte.g. LOINC or SNOMED CT code, etc. in the content
Binding: ConsentContentCodes (example): If this code is found in an instance, then the exception applies.


..... dataPeriod Σ0..1PeriodTimeframe for data controlled by this rule
..... data SΣ1..1BackboneElementThe organ or tissue that is the target of the donation decision
...... id 0..1stringUnique id for inter-element referencing
...... extension 0..*ExtensionAdditional content defined by implementations
...... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
...... meaning Σ1..1codeinstance | related | dependents | authoredby
Binding: ConsentDataMeaning (required): How a resource reference is interpreted when testing consent restrictions.


Fixed Value: instance
...... reference SΣ1..1Reference(ADHA Organ or Tissue for Donation BodyStructure)The actual data reference
....... id 0..1stringUnique id for inter-element referencing
....... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
....... reference ΣC1..1stringLiteral reference, Relative, internal or absolute URL
....... type Σ0..1uriType the reference refers to (e.g. "Patient")
Binding: ResourceType (extensible): Aa resource (or, for logical models, the URI of the logical model).

....... identifier Σ0..1IdentifierLogical reference, when literal reference is not known
....... display Σ0..1stringText alternative for the resource
..... provision 0..*See provision (Consent)Nested Exception Rules

doco Documentation for this format

Differential View

NameFlagsCard.TypeDescription & Constraintsdoco
.. Consent 0..*ConsentRecord of organ and tissue donation decision held by the Australian Organ Donor Register
... Slices for extension 0..*ExtensionExtension
Slice: Unordered, Open by value:url
... dateInitialRegistration S0..1dateTimeDate the individual first registered
URL: http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-date-initial-registration-1
... identifier S1..*IdentifierIdentifier for this record (external references)
... status S1..1codedraft | proposed | active | rejected | inactive | entered-in-error
Fixed Value: active
... scope S1..1CodeableConceptWhich of the four areas this resource covers (extensible)
Required Pattern: At least the following
.... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
..... system1..1uriIdentity of the terminology system
Fixed Value: http://terminology.hl7.org/CodeSystem/consentscope
..... code1..1codeSymbol in syntax defined by the system
Fixed Value: adr
... Slices for category S1..*CodeableConceptClassification of the consent statement - for indexing/retrieval
Slice: Unordered, Open by pattern:$this
.... category:health 1..1CodeableConceptConsent for healthcare service, procedure, or activity
Required Pattern: At least the following
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... system1..1uriIdentity of the terminology system
Fixed Value: http://loinc.org
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 59284-0
.... category:aodr 1..1CodeableConceptOrgan donation consent
Required Pattern: At least the following
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... system1..1uriIdentity of the terminology system
Fixed Value: http://loinc.org
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 64300-7
... patient SC1..1Reference(ADHA Core Patient)Who the consent applies to
inv-dh-cons-aodr-01: At least reference or a valid identifier shall be present
... dateTime SC1..1dateTimeWhen this Consent was created or indexed
inv-dh-cons-aodr-03: Date shall be at least to day
... performer SC1..1Reference(ADHA Core Patient)Grantor of consent
inv-dh-cons-aodr-04: At least reference or a valid identifier shall be present
... organization SC1..1Reference(ADHA Core Organization)Custodian of the consent
inv-dh-cons-aodr-05: At least reference or display or a valid identifier shall be present
... policy S1..1BackboneElementAustralian Organ Donor Register
.... authority S0..1uriEnforcement source for policy
Fixed Value: http://australianorgandonorregister.gov.au
.... uri S1..1uriSpecific policy covered by this consent
Fixed Value: http://www.australianorgandonorregister.gov.au/aodr
... provision SC1..1BackboneElementIndividual's decision about donation
inv-dh-cons-aodr-02: Specific provisions shall be specified if the individual is willing to donate, otherwise prohibited
.... type S1..1codedeny | permit
.... action S1..1CodeableConceptRemoval of organ or tissue for donation
Required Pattern: At least the following
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... system1..1uriIdentity of the terminology system
Fixed Value: http://snomed.info/sct
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 53958007
.... provision S0..*BackboneElementIndividual's decision about donation of specific organ or tissue
..... type S1..1codedeny | permit
..... action S1..1CodeableConceptRemoval of organ or tissue for donation
Required Pattern: At least the following
...... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
....... system1..1uriIdentity of the terminology system
Fixed Value: http://snomed.info/sct
....... code1..1codeSymbol in syntax defined by the system
Fixed Value: 53958007
..... data S1..1BackboneElementThe organ or tissue that is the target of the donation decision
...... meaning 1..1codeinstance | related | dependents | authoredby
Fixed Value: instance
...... reference S1..1Reference(ADHA Organ or Tissue for Donation BodyStructure)The actual data reference
....... reference 1..1stringLiteral reference, Relative, internal or absolute URL

doco Documentation for this format

Snapshot View

NameFlagsCard.TypeDescription & Constraintsdoco
.. Consent C0..*ConsentRecord of organ and tissue donation decision held by the Australian Organ Donor Register
... id Σ0..1idLogical id of this artifact
... meta Σ0..1MetaMetadata about the resource
... implicitRules ?!Σ0..1uriA set of rules under which this content was created
... language 0..1codeLanguage of the resource content
Binding: CommonLanguages (preferred): A human language.

Additional BindingsPurpose
AllLanguagesMax Binding
... text 0..1NarrativeText summary of the resource, for human interpretation
... contained 0..*ResourceContained, inline Resources
... Slices for extension 0..*ExtensionExtension
Slice: Unordered, Open by value:url
... dateInitialRegistration S0..1dateTimeDate the individual first registered
URL: http://ns.electronichealth.net.au/fhir/StructureDefinition/dh-date-initial-registration-1
... modifierExtension ?!0..*ExtensionExtensions that cannot be ignored
... identifier SΣ1..*IdentifierIdentifier for this record (external references)

Example General: {"system":"urn:ietf:rfc:3986","value":"Local eCMS identifier"}
... status ?!SΣ1..1codedraft | proposed | active | rejected | inactive | entered-in-error
Binding: ConsentState (required): Indicates the state of the consent.


Fixed Value: active
... scope ?!SΣ1..1CodeableConceptWhich of the four areas this resource covers (extensible)
Binding: ConsentScopeCodes (extensible): The four anticipated uses for the Consent Resource.


Required Pattern: At least the following
.... id0..1idUnique id for inter-element referencing
.... extension0..*ExtensionAdditional content defined by implementations
.... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
..... id0..1idUnique id for inter-element referencing
..... extension0..*ExtensionAdditional content defined by implementations
..... system1..1uriIdentity of the terminology system
Fixed Value: http://terminology.hl7.org/CodeSystem/consentscope
..... version0..1stringVersion of the system - if relevant
..... code1..1codeSymbol in syntax defined by the system
Fixed Value: adr
..... display0..1stringRepresentation defined by the system
..... userSelected0..1booleanIf this coding was chosen directly by the user
.... text0..1stringPlain text representation of the concept
... Slices for category SΣ1..*CodeableConceptClassification of the consent statement - for indexing/retrieval
Slice: Unordered, Open by pattern:$this
Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement.


.... category:health Σ1..1CodeableConceptConsent for healthcare service, procedure, or activity
Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement.



Required Pattern: At least the following
..... id0..1idUnique id for inter-element referencing
..... extension0..*ExtensionAdditional content defined by implementations
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... id0..1idUnique id for inter-element referencing
...... extension0..*ExtensionAdditional content defined by implementations
...... system1..1uriIdentity of the terminology system
Fixed Value: http://loinc.org
...... version0..1stringVersion of the system - if relevant
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 59284-0
...... display0..1stringRepresentation defined by the system
...... userSelected0..1booleanIf this coding was chosen directly by the user
..... text0..1stringPlain text representation of the concept
.... category:aodr Σ1..1CodeableConceptOrgan donation consent
Binding: ConsentCategoryCodes (extensible): A classification of the type of consents found in a consent statement.



Required Pattern: At least the following
..... id0..1idUnique id for inter-element referencing
..... extension0..*ExtensionAdditional content defined by implementations
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... id0..1idUnique id for inter-element referencing
...... extension0..*ExtensionAdditional content defined by implementations
...... system1..1uriIdentity of the terminology system
Fixed Value: http://loinc.org
...... version0..1stringVersion of the system - if relevant
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 64300-7
...... display0..1stringRepresentation defined by the system
...... userSelected0..1booleanIf this coding was chosen directly by the user
..... text0..1stringPlain text representation of the concept
... patient SΣC1..1Reference(ADHA Core Patient)Who the consent applies to
inv-dh-cons-aodr-01: At least reference or a valid identifier shall be present
... dateTime SΣC1..1dateTimeWhen this Consent was created or indexed
inv-dh-cons-aodr-03: Date shall be at least to day
... performer SΣC1..1Reference(ADHA Core Patient)Grantor of consent
inv-dh-cons-aodr-04: At least reference or a valid identifier shall be present
... organization SΣC1..1Reference(ADHA Core Organization)Custodian of the consent
inv-dh-cons-aodr-05: At least reference or display or a valid identifier shall be present
... source[x] Σ0..1Source from which this consent is taken
.... sourceAttachmentAttachment
.... sourceReferenceReference(Consent | DocumentReference | Contract | QuestionnaireResponse)
... policy S1..1BackboneElementAustralian Organ Donor Register
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... authority SC0..1uriEnforcement source for policy
Fixed Value: http://australianorgandonorregister.gov.au
.... uri SC1..1uriSpecific policy covered by this consent
Fixed Value: http://www.australianorgandonorregister.gov.au/aodr
... policyRule ΣC0..1CodeableConceptRegulation that this consents to
Binding: ConsentPolicyRuleCodes (extensible): Regulatory policy examples.

... verification Σ0..*BackboneElementConsent Verified by patient or family
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... verified Σ1..1booleanHas been verified
.... verifiedWith 0..1Reference(Patient | RelatedPerson)Person who verified
.... verificationDate 0..1dateTimeWhen consent verified
... provision SΣC1..1BackboneElementIndividual's decision about donation
inv-dh-cons-aodr-02: Specific provisions shall be specified if the individual is willing to donate, otherwise prohibited
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... type SΣ1..1codedeny | permit
Binding: ConsentProvisionType (required): How a rule statement is applied, such as adding additional consent or removing consent.

.... period Σ0..1PeriodTimeframe for this rule
.... actor 0..*BackboneElementWho|what controlled by this rule (or group, by role)
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
..... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
..... role 1..1CodeableConceptHow the actor is involved
Binding: SecurityRoleType (extensible): How an actor is involved in the consent considerations.

..... reference 1..1Reference(Device | Group | CareTeam | Organization | Patient | Practitioner | RelatedPerson | PractitionerRole)Resource for the actor (or group, by role)
.... action SΣ1..1CodeableConceptRemoval of organ or tissue for donation
Binding: ConsentActionCodes (example): Detailed codes for the consent action.



Required Pattern: At least the following
..... id0..1idUnique id for inter-element referencing
..... extension0..*ExtensionAdditional content defined by implementations
..... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
...... id0..1idUnique id for inter-element referencing
...... extension0..*ExtensionAdditional content defined by implementations
...... system1..1uriIdentity of the terminology system
Fixed Value: http://snomed.info/sct
...... version0..1stringVersion of the system - if relevant
...... code1..1codeSymbol in syntax defined by the system
Fixed Value: 53958007
...... display0..1stringRepresentation defined by the system
...... userSelected0..1booleanIf this coding was chosen directly by the user
..... text0..1stringPlain text representation of the concept
.... securityLabel Σ0..*CodingSecurity Labels that define affected resources
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


.... purpose Σ0..*CodingContext of activities covered by this rule
Binding: PurposeOfUse (extensible): What purposes of use are controlled by this exception. If more than one label is specified, operations must have all the specified labels.


.... class Σ0..*Codinge.g. Resource Type, Profile, CDA, etc.
Binding: ConsentContentClass (extensible): The class (type) of information a consent rule covers.


.... code Σ0..*CodeableConcepte.g. LOINC or SNOMED CT code, etc. in the content
Binding: ConsentContentCodes (example): If this code is found in an instance, then the exception applies.


.... dataPeriod Σ0..1PeriodTimeframe for data controlled by this rule
.... data Σ0..*BackboneElementData controlled by this rule
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
..... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
..... meaning Σ1..1codeinstance | related | dependents | authoredby
Binding: ConsentDataMeaning (required): How a resource reference is interpreted when testing consent restrictions.

..... reference Σ1..1Reference(Resource)The actual data reference
.... provision S0..*BackboneElementIndividual's decision about donation of specific organ or tissue
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
..... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
..... type SΣ1..1codedeny | permit
Binding: ConsentProvisionType (required): How a rule statement is applied, such as adding additional consent or removing consent.

..... period Σ0..1PeriodTimeframe for this rule
..... actor 0..*BackboneElementWho|what controlled by this rule (or group, by role)
...... id 0..1stringUnique id for inter-element referencing
...... extension 0..*ExtensionAdditional content defined by implementations
...... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
...... role 1..1CodeableConceptHow the actor is involved
Binding: SecurityRoleType (extensible): How an actor is involved in the consent considerations.

...... reference 1..1Reference(Device | Group | CareTeam | Organization | Patient | Practitioner | RelatedPerson | PractitionerRole)Resource for the actor (or group, by role)
..... action SΣ1..1CodeableConceptRemoval of organ or tissue for donation
Binding: ConsentActionCodes (example): Detailed codes for the consent action.



Required Pattern: At least the following
...... id0..1idUnique id for inter-element referencing
...... extension0..*ExtensionAdditional content defined by implementations
...... coding1..*CodingCode defined by a terminology system
Fixed Value: (complex)
....... id0..1idUnique id for inter-element referencing
....... extension0..*ExtensionAdditional content defined by implementations
....... system1..1uriIdentity of the terminology system
Fixed Value: http://snomed.info/sct
....... version0..1stringVersion of the system - if relevant
....... code1..1codeSymbol in syntax defined by the system
Fixed Value: 53958007
....... display0..1stringRepresentation defined by the system
....... userSelected0..1booleanIf this coding was chosen directly by the user
...... text0..1stringPlain text representation of the concept
..... securityLabel Σ0..*CodingSecurity Labels that define affected resources
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


..... purpose Σ0..*CodingContext of activities covered by this rule
Binding: PurposeOfUse (extensible): What purposes of use are controlled by this exception. If more than one label is specified, operations must have all the specified labels.


..... class Σ0..*Codinge.g. Resource Type, Profile, CDA, etc.
Binding: ConsentContentClass (extensible): The class (type) of information a consent rule covers.


..... code Σ0..*CodeableConcepte.g. LOINC or SNOMED CT code, etc. in the content
Binding: ConsentContentCodes (example): If this code is found in an instance, then the exception applies.


..... dataPeriod Σ0..1PeriodTimeframe for data controlled by this rule
..... data SΣ1..1BackboneElementThe organ or tissue that is the target of the donation decision
...... id 0..1stringUnique id for inter-element referencing
...... extension 0..*ExtensionAdditional content defined by implementations
...... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
...... meaning Σ1..1codeinstance | related | dependents | authoredby
Binding: ConsentDataMeaning (required): How a resource reference is interpreted when testing consent restrictions.


Fixed Value: instance
...... reference SΣ1..1Reference(ADHA Organ or Tissue for Donation BodyStructure)The actual data reference
....... id 0..1stringUnique id for inter-element referencing
....... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
....... reference ΣC1..1stringLiteral reference, Relative, internal or absolute URL
....... type Σ0..1uriType the reference refers to (e.g. "Patient")
Binding: ResourceType (extensible): Aa resource (or, for logical models, the URI of the logical model).

....... identifier Σ0..1IdentifierLogical reference, when literal reference is not known
....... display Σ0..1stringText alternative for the resource
..... provision 0..*See provision (Consent)Nested Exception Rules

doco Documentation for this format

Downloads: StructureDefinition: (XML, JSON), Schema: XML Schematron

 

Terminology Bindings

PathConformanceValueSet / Code
Consent.languagepreferredCommonLanguages
Additional Bindings Purpose
AllLanguages Max Binding
Consent.statusrequiredFixed Value: active
Consent.scopeextensiblePattern: adr
Consent.categoryextensibleConsentCategoryCodes
Consent.category:healthextensiblePattern: LOINC code 59284-0
Consent.category:aodrextensiblePattern: LOINC code 64300-7
Consent.policyRuleextensibleConsentPolicyRuleCodes
Consent.provision.typerequiredConsentProvisionType
Consent.provision.actor.roleextensibleSecurityRoleType
Consent.provision.actionexamplePattern: SNOMED CT code 53958007
Consent.provision.securityLabelextensibleAll Security Labels
Consent.provision.purposeextensiblePurposeOfUse
Consent.provision.classextensibleConsentContentClass
Consent.provision.codeexampleConsentContentCodes (a valid code from LOINC)
Consent.provision.data.meaningrequiredConsentDataMeaning
Consent.provision.provision.typerequiredConsentProvisionType
Consent.provision.provision.actor.roleextensibleSecurityRoleType
Consent.provision.provision.actionexamplePattern: SNOMED CT code 53958007
Consent.provision.provision.securityLabelextensibleAll Security Labels
Consent.provision.provision.purposeextensiblePurposeOfUse
Consent.provision.provision.classextensibleConsentContentClass
Consent.provision.provision.codeexampleConsentContentCodes (a valid code from LOINC)
Consent.provision.provision.data.meaningrequiredFixed Value: instance
Consent.provision.provision.data.reference.typeextensibleResourceType

Search Parameters

None defined.