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The Australian Organ Donor Register (AODR) is the national register for people to record their decision about becoming an organ and tissue donor.

The AODR is the only national register for people to record their decision about becoming an organ and tissue donor for transplantation after death. Registering is voluntary and people have complete choice over which organs and tissues they wish to donate. If a person does not want to become an organ and tissue donor they can register their decision not to donate.

People aged less than 18 years can become organ and tissue donors, although consent will need to be obtained from a family member at the time of death.

Context in digital health

When an individual registers for access to their Medicare information through their digital health record, the Department of Human Services can register the individual’s Medicare CDA documents in their digital health record, including their Australian Organ Donor Register entries. The data items in the Medicare documents will be loaded into the My Health Record system to be used as a source of data for the individual’s Medicare overview.

The Medicare CDA documents will be created by the Department of Human Services as the sole supplier of Medicare information within My Health Record.

The individual, and healthcare providers with access to the individual’s Medicare information, will be able to retrieve the Australian Organ Donor Register CDA document through the individual’s My Health Record.

There are a number of key business flows that occur within this process as outlined in Figure 1 below.

Organ Donation Diagram

Figure 1: Australian Organ Donor Register high-level overview

These flows are described below:

  1. Consumer records their decision to donate their organs and tissues in the event of their death in the Department of Human Services (DHS) System.
  2. The DHS System uploads the consumer preference (as part of the AODR document) to the consumer’s My Health Record.
  3. AODR records can be retrieved by the consumer or clinicians using appropriate mechanisms via the My Health Record system.

Feature specifications

The Australian Digital Health Agency has provided the following specifications that apply to the Australian Organ Donor Register described above:

Medicare - Australian Organ Donor Register v1.1

EP-1703:2014

When an individual registers for access to their Medicare information through their digital health record, Services Australia can register the individual’s Medicare CDA documents in their digital health record, including their Australian Organ Donor Register entries.

Sunday, 26 Oct 2014

National Authentication Service for Health v1.0

EP-1011:2012

The National Authentication Service for Health (NASH) makes it possible for healthcare providers and supporting organisations to securely access and exchange health information.

NASH provides Public Key Infrastructure (PKI) Certificates that help you or your organisation to:

Friday, 30 Mar 2012

Roadmap

Roadmap: 
October, 2014
Completed
This release is for clinical information system vendors who are designing and developing systems to parse, extract and process information contained in the Australian Organ Donor Register CDA documents retrieved from the Personally Controlled Electronic Health Record (PCEHR) system using the business-to-business (B2B) gateway. When an individual registers for access to their Medicare information through their PCEHR, the Department of Human Services can register the individual’s Medicare CDA documents in their PCEHR, including their Australian Organ Donor Register entries. The data items in the Medicare documents will be loaded into the PCEHR system to be used as a source of data for the individual’s Medicare Overview. The Medicare CDA documents will be created by the Department of Human Services as the sole supplier of Medicare information within the PCEHR system. The individual, and healthcare providers with access to the individual’s Medicare information, will be able to retrieve the Australian Organ Donor Register CDA document through the individual’s PCEHR.